Question 1

What is NURA Community?

Accepted Answer

NURA Community is a social network and online community platform where people with Long COVID, ME/CFS and related conditions can meet, talk and share content with others.

You can sign up to NURA Community either through your web browser, or by downloading the Mighty Networks app via the Apple app store or Google Play, and searching for NURA Community.

Question 2

What do I do if I need help urgently?

Accepted Answer

Unfortunately, NURA cannot provide crisis support.

If you are in a mental health crisis or just need to speak to someone, please call:

UK and Ireland
Samaritans - 116 123
Free to call and available 24/7

US
988 Suicide & Crisis Lifeline - 988
Toll-free, 24/7 service

If you think you might be experiencing a medical emergency, call 999 in the UK and 911 in the US (or your local emergency services number) or go to A&E or urgent care.

Click here to find a list of crisis support centres around the world.

Other helplines

UK:   
ME Connect - 0344 576 5326
Support and information for people affected by Long COVID and ME/CFS
Available every day from 10am - 12noon
2 - 4pm
7 - 9pm

Listen to M.E. - 0117 927 9551 (Choose option 2)
Helps adults affected by ME to feel less isolated and offer a listening ear. Carers and family members also welcome to call
Available every Monday from 11am - 1pm
Every Thursday from 1pm - 3pm
  
National Suicide Prevention Helpline - 0800 689 5652
Compassionate and understanding lifeline for people grappling with their mental well-being or thoughts of suicide
Available every day from 6pm until midnight

CALM - 0800 58 58 58
Men’s mental health support
Available every day from 5pm until midnight

Switchboard - 0800 0119 100
LGBTQIA+ support
Available every day from 10am - 10pm
Switchboard also have an instant messaging service, which you can access through their website.

US:
Crisis Text Line - Text HOME to 741741

LGBT National Hotline - 888 843 4564
800-246-7743 (Youth Talkline)
888-234-7243 (Senior Hotline)

Available Monday - Friday
1pm - 9pm/pacific time
4pm - midnight/eastern time

Available Saturday:
9am - 2pm/pacific time
Noon - 5pm/eastern time

The Trevor Project - 1-866-488-7386
LGBT crisis intervention and suicide prevention hotline
Available 24/7

Trans Lifeline - 877-565-8860
Available Monday - Friday
10am – 6pm Pacific
11am – 7pm Mountain
12pm – 8pm Central
1pm – 9pm Eastern

Question 3

Why are you called NURA?

Accepted Answer

‘Nura’ means light, brightness or radiance in several languages. It is also the anadrome of ‘arun’, a Sanskrit word for dawn or sunrise. This is significant for us in two ways: 1) because the patient community is full of brightness, hope and compassion; and 2) because we aim to shine a light on conditions which have long been neglected and dismissed. We really like the name NURA, even if our friend told us it sounds like a protein bar.

Question 4

How can I give you feedback, or support what you are doing?

Accepted Answer

We value feedback and are committed to building NURA together with other patients. You can give us feedback inside the community itself, in the "Give us feedback" space. Alternatively, please email us at nuracommunity@gmail.com or contact us here.

Your support is vital to keeping our community thriving. If you’d like to contribute, we deeply appreciate donations of any size. You can donate as little as £1 or £2 per month. Every contribution makes a difference. You can donate here.

Question 5

What else are you up to?

Accepted Answer

NURA Community strives to provide support, resources and community for the estimated 100m+ people worldwide with Long COVID, ME/CFS and commonly co-occurring conditions. We are committed to furthering our offering of community and support to improve the lives of people affected by these conditions, and will provide updates as we have them.

Frequently asked questions

What is NURA Community?

What do I do if I need help urgently?

Why are you called NURA?

How can I give you feedback, or support what you are doing?

What else are you up to?